30 Wednesday May 2012
Posted in Infantile spasms, update
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Ben and I returned home from the hospital this afternoon with good news. The medicine that he’s on is doing it’s job- his EEG looks “phenomenal” and his doctors are all very happy. We’re going to have a follow up appointment with his neurologist next week where we’ll learn more. We’re going to discuss weaning this medicine and what our next steps might be. Thanks for all the good thoughts!
This memorial day weekend we whisked up to picturesque Connecticut to see our friends Brianna and Geoff get married. We also had …
In Connecticut for a wedding this weekend and Ben thinks it’s pretty funny to make silly sounds so we took …
Yesterday Amy and I took Benjamin into Central Park to watch a Beep Baseball game. Beep Baseball is a modified …
Benjamin has been in an amazing mood lately – all giggles and smiles. He just cracks us up. Occupational Therapy …
It finally happened! A tooth surfaced! In fact, two teeth! Benjamin is very proud of himself. But remember those 7 …
So while last week was a lot of fun with all kids- there is one things kids do better than …
Benjamin went on his first trip last week! For Spring Break we try to get to the Outer Banks in …
In addition to gaining a taste for purees (today he happily ate pears!), Benjamin is also trying some of the …
It has been very frustrating, but we are finally getting Benjamin’s seizure meds today. We’re hoping they work and they …
So I’m not going to lie – it’s scary stuff. You know it’s not good news when the doctors recommend …
Another quick update to let you know Benjamin is on his way home. I will write a longer post about …
Benjamin has been in the hospital since Sunday. He started having little seizures so we brought him into the ER at CHONY. …
Six months! Benjamin has been home for six months – and while he’s still not yet at the “been home …
This boy wants to crawl so badly! He is almost there too. So far he is able to get on …
We’ve had a busy birthday week filled with parties and fun. Benjamin has even developed a taste for icing! There …
One year ago… We had just come back to New York after spending a few days with Carol and things …
We have had a fun weekend with Benjamin getting to see lots of family. First Carol and family visited and …
One year ago this week began a seriously scary time. It was then that Carol’s water broke – PPROM – …
