When we left Benjamin last night his blood pressure was reading a little low, but no one was very worried, thinking once they got some fluids in him he’d bounce back up. So we went back home, got some love from Cayman, and went to sleep in our own bed – until about 5 when the phone rang. Benjamin’s blood pressure had crashed overnight and his kidneys had also stopped working as a result. “He is significantly sicker” they told us. They put him on dopamine and epinephrine and were struggling to get the pressure stabilized. When we called back later that morning he still had not urinated but they had gotten his pressure to go in the right direction (if not to a good place yet).
Amy showed her stuff as a mom and spent her birthday watching the doctors messing with him, taking blood, giving blood, with one eye on the blood pressure at all times. They had put an arterial line in his head to track the pressure better, which looks ugly but works. Over the day the pressure gradually went up. All this time his respiration was great and they even were able to wean him more off the ventilator settings (incredibly).
Then finally – he peed. Amy said the nurse did a dance. Everyone was very relieved.
Right now as I write this next to his isolette his blood pressure is normal, his last diaper was soaked, but he is still looking extra puffy from all the fluid, but that is going away. Also he had another head ultrasound and it looked clear – a wonderful thing.
I’ve said this before: Everyone told us that being a NICU parent is like a roller-coaster. But two things wrong with that description: we like roller-coasters and they are also very short. Amy and I have decided that the NICU is like running a super hilly marathon you didn’t sign up for and didn’t train for – also you are being chased by dogs.
These past two days just reminded us that even though we have grown accustomed to our baby in the box, Benjamin is still in critical condition. But we are so happy he seems to be bouncing back from the drama today – a pretty good birthday present for mom.