Road bumps

We haven’t posted in a while and we know people sometimes get a little nervous for us when it’s quiet. But don’t worry, things have been ok for little Mr Benjamin. He hasn’t quite made the progress we hoped in the past few days – he is still on the ventilator and no decision has been made on the PDA surgery yet. He also went backwards a tiny bit in his vent settings but not too far.

The doctors were also concerned about low platelets and his blood pressure going a little lower again the past few days so they ran a bunch of tests on him. It looks like he has a fungal infection but he is being treated for it and we were told not to worry too much about it. The infection could be to blame for his blood pressure and platelets so we are glad they figured it out and got him the right medicine. He will get tested again in a week to see if it went away.

In other news it looks like the little man is getting his dad’s curly hair. Amy thinks it’s just messy.

Benjamin also has had so many visitors this week: Joseph, Brianna, Annalise, Kristina, Annalisa, Grandpa W, Damon, Sarah, Elisha, Grandma W, Grandma L, Anthony, and Denise. He’s a lucky boy.



8 thoughts on “Road bumps

  1. And it was such a thrill to meet him! The pictures do NOT do him justice, he’s so cute!,!

  2. He looks so big in this picture. I can’t wait to see him again!! Love him!

  3. Hi Benjamin: I think you look great. I can see daddy’s curly hair. Love ya.

  4. Hi Amy and Joe,
    Benjamin looks great!!! Carol shared with me your website and I enjoyed geting caught up with how he is doing. I think about you and him everyday….he is an incredible, tenacious little guy. Maybe, when he is out of the hospital he can make a trip back to Lancaster to a fun little petting zoo on Groffdale Road and you can get a slice of that Shoo-Fly pie!!! Blessings to you both.
    (Dr. Martin)

    • Dr Martin,
      It is so great to hear from you. Thanks for checking in and thinking of us. When he is bigger we will definitely bringing him back to PA for visits.

  5. I’m so glad to hear that little Benjamin is doing so well. You guys are much in my thoughts.

  6. Hi Amy, Joe and Benjamin,
    Just thinking of you and wondering how you all are doing. My how Ben has grown!!!
    Sounds like you have had a rough go of things since leaving lgh. But with springs arrival better days are ahead. He looks great. I wish you all the best and will keep you in my prayers. I’ll check in from time to time for updates Take care.

    • Thanks Carol – He’s over a kilo already and 13.75 inches last we checked… definitely bigger. We’re also hoping spring brings easier days (and no more snow 🙂 )

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