Ok- I get it now. Why they say it’s like a roller coaster – because when the downs come, they come fast.
When we last wrote, Benjamin was acting a little off (sleepy and less responsive) and they had found a fungal infection and started treating it. Also his blood pressure started dropping again so they needed to restart the dopamine. By the next day they started giving him a slew of antibiotics and a stronger anti-fungal medicine. They also ran a bunch of tests because his blood count had been low and his platelets had been low. They also redid a head ultrasound and found a grade 1 bleed in his brain. It is pretty mild and if it doesn’t grow it should not cause any problems, but it is pretty scary for us. They are going to check him out again in a month to see if it has changed.
By last night they had his blood pressure under control but his ventilator needs increased a lot. For a while they had him up to 100 breaths per minute (a few days ago we were bragging that they had him down to 18). Luckily he seemed to respond to that and they brought him down to 40 – pretty much where he started from when he got to NY.
The doctors seem to have everything under control, but it’s really scary for us. Hopefully everything was inter-related and he will bounce back quickly and will be better when the infection is kicked.
Like they say – the only way out is through… keep our little guy in your thoughts.