Besides the ROP crap in the last post, Benjamin has been doing great! First off – on Friday they moved him out of his isolette and into a crib! He has been off the heater for a few days and he was ready to be out in the world a bit. It makes such a huge difference to us. No more opening up the port holes to touch him, no more plastic separating us from him and it feels so much more normal. This whole experience is strange through and through, but seeing Ben in a crib, if you squint and forget about the IVs, the monitors and the CPAP, you can almost imagine him out of the NICU at home. After now over 100 days in the hospital, that would be wonderful.
On the feeding front, Ben has been practicing a few times a week on a bottle and has beaten his previous record and took 20 ml the other day. That’s over half a feeding for him. It will be great to see him getting all of his milk through the bottle and none through a feeding tube.
Also good news – he is up to 4 pounds, 3 ounces!
And finally – they have been trialling him off of CPAP for 2 hours twice a day, and tonight they took him off at 8pm and when we called to check in on him at midnight, he was still off and the NP said the nurse can keep him off as long as he tolerates it. This is huge! We’ll find out tomorrow how long he lasted.
Today Amy and I even got out of the hospital for a bit and went to NJ for Jason and Heather’s wedding – congrats you guys! We had a great time!