(Looking for actual fungus puns?)
Well, it’s official – the fungal infection is back. One of Benjamin’s urine cultures came back positive with the same kind of fungus we thought was beaten last time. It seems it was hiding deep down and what they saw on the x-ray (Osteomyelitis) is a result of the infection. The doctors were already convinced that this is what was happening. In fact, they were so sure, they would have gone forward with treating for the fungus even if they didn’t see the positive culture. So the doctors weren’t happy to see the culture, but they were happy to see their theory was correct and that they know for sure what they are fighting.
The treatment is likely 6-12 weeks of the anti-fungal intravenously once a day. This doesn’t mean Ben will need to be in the NICU for another 3 month necessarily. We are seeing about getting a Broviac catheter for Ben that will allow him to be able to get an IV at home.
But first we still need to finish weaning off the CPAP and get all feeds by bottle. Benjamin has been making some pretty good progress on the bottle and is getting about half his feeds that way now. And he is up to 6 lbs, 6 oz! CPAP is slower progress, but progress is being made.
Still no date on the second eye surgery, but it may be this week.
Also – Happy 1 month (corrected) little buddy!
And thanks for all the support on the last post. We didn’t really let the comment that sparked it bother us much, but it was good for us to get the things we have been feeling down on “paper” and even better to receive such positive messages in response.