Cautiously Optimistic

The eye surgeon visited Benjamin yesterday to see how he is progressing since the last vitrectomy. What he saw was pretty positive. He no longer saw any blood in his eyes or scarring and even better – he said that the retinas have partially reattached in both eyes. This is good news. The edges of the retinas are still stiff however. He is hoping they become less rigid over time and can then reattach.

Now I’m not a doctor (I don’t even play one on TV) but the way I imagine it is that the retina is like a movie screen and the front of the eye is like a projector that projects images onto it. Now imagine that movie screen is only partially attached to the wall and all the sides are flapping around and too stiff to lie flat. That is sort of the situation. Now this is an improvement to how it was after last surgery, where the screen was crumpled completely and lying on the floor. And since it’s a movie theater the floor is sticky and has years’ worth of popcorn and gummy bears layered on it. (The metaphor is getting away from me).

Even if I have this completely wrong – the message we received from the surgeon is that this is a positive direction but we still want the rest of the retina to attach in both eyes, but it could take months and months (if it happens at all). And then of course even if everything reattaches the way we hope they will, Ben will still be very visually impaired. But again, no matter what happens it is not going to keep our tough little guy down or keep him from having an amazing life.

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"Is that eye surgeon gone yet?"

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8 thoughts on “Cautiously Optimistic

  1. I’m having such a good feeling about this!! Seems like lately we’ve had good news on top of good news! Keep going, Ben! We love you!

  2. Sounds wonderful to me! Ben is The Man! He is getting super cute which matches his super power to fight! Yay Ben….will keeping sending you mad good Ju-Ju your way. 🙂

  3. I admire you optimism and all good thoughts to Baby Benjamin. My son is a micro preemie – 25 weeker. He’s still in the NICU after 3.5 months. Hopefully he will be home with us soon.

  4. My daughter was also born 2/7 but in 2010 at 23w4d and stayed nearly 5 months in the NICU. I know what you are going through and I am so happy that Benjamin has you and Amy as his parents. Hang in there, it is worthwhile no matter how bleak a single moment may seem to be. ROP is tough but there is more to a child than his disabilities or abilities.

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