Benjamin, a tough former micro-preemie, was born at 23 weeks and 3 days gestation on February 7th, 2011 – weighing in at 1 lbs, 12 oz. He is a real fighter and has beaten so many odds, including PPROM at 19 weeks gestation. Ben suffered from severe retinopathy of prematurity which has left him blind. After 207 days in the NICU, Benjamin came home.
Some of his battles include:
- PPROM at 19w 4d gestation
- Born on Feb 7th, 2011 at 1 lbs, 12 oz
- Transferred to CHONY on March 8th 2011
- PDA ligation surgery on March 28th 2011
- On ventilator for just under 2 months
- On Bubble CPAP for almost 4 months
- Diagnosed with Chronic Lung Disease (CLD)
- Diagnosed with severe Retinopathy of prematurity (ROP) – stage 3, zone 1. Had laser surgery, Avastin injections, and two vitrectomy operations – Progressed to stage 4. This has resulted in being extremely visually impaired.
- Dealt with two bouts of kidney failure
- Diagnosed with inter-cerebral hemorrhages (ICH) in his left occipital lobe and cerebellum
- Fought several infections, including a very persistent Candida fungal infection
- Had surgery to repair inguinal hernia
- Came home on September 2, 2011
- Receives Physical Therapy, Occupational Therapy, Speech/Feeding Therapy and Visual Therapy through early intervention
- Completed treatment for fungal infection March 12, 2012
- Diagnosed with Infantile Spasms on March 27, 2012 – treated with Sabril (vigabatrin) successfully
- April 2013 completes vigabatrin treatment, currently spasm-free
His story begins here.